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Matthew & Andrew – HLH | Hemophagocytic Lymphohistiocytosis | 700 Miles to Hope "Do the best you can until you know better. Then when you know better, do better." - Maya Angelou Toggle navigation Brand -- Home Our Story Love Trumps Grief Our Mission Our Disease What is HLH Your Guide to HLH Max the Angry Macrophage Your Guide to XLP XLP Research Focus What Is HLH Events 500 Miles To Hope Be the Match Resources Novimmune Helpful Links Privacy Policy 500 Miles To Hope Contact Us Sign up! Subscribe to our email newsletter and receive updates and the latest news. Matthew And Andrew Akin Foundation 11503 St. Charles Rock Rd. Bridgeton, MO 63044 IRS 501(c) 3 Tax ID # 27-3427104 636-541-2766 The mission of The Matthew and Andrew Akin Foundation is to support the world-renowned experts at the HLH Center of Excellence at Cincinnati Children's Hospital and their four core priorities: Research, Clinical Care, Education, and Family Support. The goal of the foundation is to help build a housing structure by Cincinnati Children’s Hospital so the families can live in a “clean” environment outside the hospital pre and post transplant. During the transplant process the children won’t have functioning immune systems for many months so it is imperative that they are protected. Families come from across the world to Cincinnati Children’s Hospital because they perform more pediatric bone marrow transplants yearly than any other hospital in the United States. The average stay in Cincinnati for a family going through the transplant process is xx months. We lived in Cincinnati for 17 months and would have welcomed a structure like this to call home. The foundation will also support the National Marrow Donor Program which is the leading organization in the field of marrow and cord blood transplantation, working every day to connect patients, doctors, donors and researchers to the resources they need. We will fund bone marrow drives to get more people on the registry in hopes of finding a life saving match. Our sons underwent four transplants and we are very grateful for this organization because it gave our sons a chance at life. Privacy Policy...